Tay-Sachs

Megaphone shouting "Four More Years!"

Kids Who Die – and Their Families – Deserved a Second Term

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A longer, healthier, carefree life is something most of us take for granted, but one that many parents can’t fathom.

Blurred image of a pregnant belly

Time Moves Differently When You’re Pregnant and Your Toddler is Dying

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As a healthy baby grew inside me, my focus was on actively mothering my dying daughter.

The Undeniable Magic of Being Truly Noticed

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I was shattered near the end of my young son's life. An extension of true compassion was an act of grace like no other.

Surviving the Agony of Anticipation

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As I see the world sink into the abyss amid the coronavirus pandemic, I recall the first days after my daughter Talia’s terminal diagnosis.

My Grief is F*cking Funny

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Why I never pass up a chance to laugh my ass off. Especially when I'm grieving.

Grief: There’s No Comparison

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We may try size up our grief to justify the depth of our pain, or to remind ourselves that it could be worse. But trying to determine a hierarchy does no one any good.

Coming to Terms

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The simple phrase suggests contracts and litigation. For me, it's a complex, daily practice in grieving my son's death from Tay-Sachs.

A Video Network All Their Own

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A veteran producer's new website uses television-quality video to reach parents of terminally ill children.

From My Inbox, a Grim Reminder

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The school district emailed to remind me about kindergarten registration. The thing is, my younger daughter died two years ago.

Luisa Street, One Year Later

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On a thoroughfare marked by personal tragedy, I find myself embracing possibility once again.